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Becoming a member/partner of EB Resnet

Membership/partnership is open to all national EB support groups/ EB patient organisations/companies who are legally constituted under the laws of their own country.

All member groups/companies should have a majority focus on EB and ideally relation to EB research.

There is currently no membership/partnership fee.


Applications for EB Resnet membership/partnership has to be sent either via email to or to

DEBRA Austria

Am Heumarkt 27/1

1030 Vienne



We are looking forward to receiving your request.

EB Resnet Terms of Reference 2021

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