Disclosure statement in accordance with Sec 25 Austrian Media Act (MedienG) and information statement in accordance with Sec 5 Austrian E-Commerce Act (ECG)
DEBRA Austria, Hilfe bei Epidermolysis bullosa (ZVR 412404499)
Registered Office /Address
Am Heumarkt 27/1
1030 Vienna, Austria
T +43 1 876 40 30
F +43 1 876 40 30 - 30
Competent supervisory authority
Landespolizeidirektion Salzburg, sicherheits- und verwaltungspolitische Angelegenheiten (SVA).
Please find here the Austrian Association Act 2002 and the website of the Landespolizeidirektion Salzburg.
Purpose of the association
The association is not for profit and pursues exclusively and directly (i) the purpose of promoting the well-being of people living with Epidermolysis Bullosa (EB) and (ii) the purpose of promoting the scientific research and doctrine of Epidermolysis Bullosa in order to ease and heal this disease.
Basic intention of this medium
Presentation and promotion of EB-ResNet, a network of active EB research patients organisations with the common aim to find cures and therapies for people living with EB. As well as information regarding Epidermolysis bullosa, and EB-related research and donations.
Representation in accordance with the bylaws of the association
The President shall represent the association. Written documents of the association have to be signed by the President and by the Secretary in order to be effective. However, if financial matters are concerned (dispositions regarding assets), the signature of the President and of the Treasurer is required. In the event that the President, the Secretary, or the Treasurer are prevented, they shall be represented by their deputies.
Dr. Rainer Riedl
Dr. Gabriela Pohla-Gubo
Representative of the affected
Deputy of DEBRA Südtirol
Contoller: Dr. Gerhard Branstätter, Dr. Rudolf Hametner
Conception and implementation of the website
Getreidemarkt 1, 1. Stock, Top 10 , 1060 Wien