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The EB Expert Panel - EBEP

This panel works to act as guardian of scientific quality and relevance to people with EB of the research that EB Resnet funds. Its members are senior EB researchers and clinicians who jointly reflect the breadth of EB research. Research funded by EB Resnet members is reviewed by this panel which is central to maintaining our reputation as a research funder among the academic and clinical research community, bioindustry, and research sponsors and donors.

The panel has an advisory role in relation to EB Resnet member organisations which support research, but has no executive role in any of EB Resnet's member organisations. All members of the EB Expert Panel work according to EB Resnet's terms of reference.

Whenever a 'special' call is launched for research proposals in a specific area of clinical or research need, or in case of for proposals requiring more extensive or alternative evaluation, additional people with the required specialist knowledge relevant to that call may be invited to join the EB Expert Panel.

Get to know some of our EBEP members

Current members

  • Prof. Guerrino Meneguzzi (ADSM - Association for the Development of Medical Sciences, Faculté de Médecine, Nice, France)
  • Prof. Carien Niessen (University of Cologne, Germany)
  • Dr. Agnes Schwieger-Briel (Universitäts Kinderspital Zürich, Schwitzerland)
  • Prof. Lydia Sorokin (University of Münster, Germany) - resigned 2022
  • Prof. Eli Sprecher (Tel Aviv Sourasky Medical Center, Israel)
  • Prof. Jouni Uitto (Thomas Jefferson University, USA) - deceased 2022
  • Prof. Giovanna Zambruno (Bambino Gesù Children’s Hospital, Italy)
  • Dr. Rainer Riedl (Patient Representative, Austria)
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