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Conferences & events

Upcoming conferences

EB Congress 2024 - Activating Awareness of EB and Other Rare Disorders in Africa and MENA Regions

Hosted by DEBRA Egypt in collaboration with the African Society of Human Genetics, and endorsed by DEBRA International, this will be the first EB Congress to be held on the African continent.
This event will welcome MENA, African, and international representatives to learn about the latest updates on EB research, healthcare, and advocacy efforts. The Congress will also host a number of social events including two gala dinners and an art exhibition to showcase the artwork of persons living with EB across the globe.

The 1st MENA Region & African International EB Congress 2024 will be taking place from 25th to 28th April 2024 at the InterContinental Cairo Semiramis hotel on the banks of the Nile in Cairo, Egypt.

Visit the Congress Website


EB Clinet Conference 2024

The 5th EB Clinet Conference will be held on 17 -18 October 2024 in Vienna, Austria.

Health care professionals from all over the world will meet at the venerable Vienna Marriott Hotel to exchange information about the latest developments in the field of clinical studies and the treatment of EB patients. Registration for the EB Clinet Conference is now open. 

Congress Website      Register now


Past events

2023: 25th World Congress of Dermatology

Dermatology Beyond Borders – Science – Care – Communities

‘Dermatology Beyond Borders’ encapsulates the hope for clinicians, researchers, industry and other partners to gather in Singapore for the 2023 WCD to extend the boundaries of dermatology.

The conference will improve cooperation across geographic, political and economic borders, and collaboration to promote dermatology and improve skin health for all. It will present a broad, deep and interesting scientific programme that will cover not only clinical areas, but also enhance patient and community engagement, and promote understanding of basic, translational, and implementation science

The conference will be underpinned by Science, will advance Care, and will celebrate Communities.

When: 3 - 8 July 2023

Format: In-person

Location: Singapore

Visit the congress website for further details


2021: Global EB Patients Conference 16 September - 19 September

For many years now, clinicians, researchers and, above all, EB patients from all over the world have been exchanging ideas at the DEBRA International Congress.

"You are not alone" - was the motto of the DEBRA International Patient Conference 2021 organised by DEBRA Russia. EB does not only affect a few people, although it is one of the rare diseases. The first virtual DEBRA congress demonstrated this in an impressive way. More than 15,000 participants from over 130 countries show that the topic is a big one and that the EB family worldwide is much bigger than previously thought.

Virtual and free of charge

Actually, the congress should have taken place in Moscow. All participants then travelled to Red Square - but purely virtually and free of charge. The Russian landmark served as the backdrop for the well-functioning online congress platform. For the interaction of the participants, a 3D space was developed with virtual stages, an area for panel discussions, coffee breaks and communication rooms. Participants had the possibility to attend the sessions in their own time zone. There was also a wide range of translation services. In addition to the Medical Track Stage, which focused on clinical and research topics, many people also visited the Patient Track Stage, which provided a platform for people with EB, DEBRA groups worldwide and some entertainment.

Read more about the conference in the news article.

More about the Congress


EB2020: 1st Global Congress on Epidermolysis Bullosa 

From 19-23 January 2020, the EB2020 Research Conference, the 5th Conference of EB-CLINET as well as the DEBRA International Congress took place together in London as the '1st Global Congress on Epidermolysis Bullosa'.

This ground-breaking meeting brought together all global knowledge on EB research, clinical management and the EB Community. This pooling of state-of-the-art expertise across the key stakeholders not only provided guidance for the professionals involved in EB, but also helped in the development of strategies for the research, regulatory, funding, and healthcare communities. With the emphasis on current scientific and clinical data and fostering strategic and collaborative work, this meeting made a difference in the world of EB and helps raise awareness of the condition. DEBRA UK hosted the EB World Congress EBWC 2020 event, supported by an alliance of more than 20 rare disease and dermatology organisations worldwide.

More details under news.

Get yourself informed about the event!

Click here to reach EBWC 

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