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EB research

Why do we need research in Epidermolysis Bullosa?

Research is the key to better treatments. It will make step-change improvements to the quality of life for people living with EB.  

Prior to 1980, there was minimal research into and even less knowledge of EB in the medical community:  people born with this rare genetic disorder were unable to access effective care advice. Patient organisations like DEBRA started funding fundamental EB research in the 1980s, building knowledge about EB. Much progress has been made: technologies now being developed include topical and systemic drug and protein therapies through to stem-cell and gene therapies, for all EB types.

As yet, there is still no cure for EB.

Classification and characteristics of EB types and subtypes.

More about EB

Find out what it means to live with EB.

Living with EB

Find out what we already know about EB and the challenges still facing EB research.

More about EB research

Find out about EB-ResNet's research strategy and priorities.

Our research strategy

A summary of important research news.

Current EB research news

Important EB research conferences and EB-related events worldwide.

More about conferences
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